Hello everyone,
We are pleased to announce that the Cure MVID Association is joining the MaRDi.Founded by a family affected by Microvillus Inclusions Disease (MVID), Cure MVID is dedicated to research and supporting patients.
MVID, a rare genetic disease, presents medical challenges. With no curative treatment available to date, total parenteral nutrition remains the only management option. However, through Cure MVID, efforts are being made to find a treatment for this disease.
Cure MVID is working on promoting research on MVID, raising awareness among the public, and supporting patients and their families.
The president of the association is Mr. Ganesh MAMODALY.
Association Contacts:
Website: https://curemvid.com
Phone: 06 12 92 04 83
This email address is being protected from spambots. You need JavaScript enabled to view it.
Social Media: Twitter: https://twitter.com/CureMVID Facebook: https://www.facebook.com/people/Cure-MVID-Association/61557628268265/ LinkedIn: https://www.linkedin.com/company/cure-mvid-association/
We are delighted to welcome this new collaboration and eager to continue our commitment together to actively support patients and their families affected by Microvillus Inclusions Disease (MVID).
About MaRDi:
The MaRDi (Rare Digestive Diseases) are labeled reference and competence centers in the management of rare digestive diseases in France and are part of the FIMATHO health network (rare abdominal-thoracic diseases).