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The network
Introduction
Our actions
Network stakeholders
The FIMATHO project team
Rare disease reference and competence centres
Patients associations
Research laboratories
Learned societies
Our partners
The other rare disease health networks
Institutions
European networks
Rare Diseases
Pancreas
Pancreatic Cysts
Genetic pancreatitis
Autoimmune Pancreatitis
Hypertriglyceridemia-induced Pancreatitis
Cystic Dystrophy in Heterotopic Pancreas
Oesophagus
Oesophageal atresia
Congenital tracheo-oesophageal fistula
Congenital oesophageal stenosis
Idiopathic achalasia of the oesophagus
Eosinophilic oesophagitis
Diaphragm
Diaphragmatic hernia
Diaphragmatic eventration
Digestive system
Crohn’s disease
Ulcerative colitis
Chronic Intestinal Pseudo-obstruction
Hirschsprung's disease
Short bowel syndrome
Familial adenomatous polyposis
Juvenile polyposis
Peutz-Jeghers syndrome
Patient pathways
Patients associations
Transition from adolescence to adulthood
Oral feeding difficulties
what are oral feeding difficulties?
Weaning off tube feeding
FIMATHO actions as regards oral feeding difficulties
Directory of professionals certified by DIU on oral feeding difficulties
Rare disease centres
Medical-social
Therapeutic Patient Education (TPE)
Lodging map
Useful resources
Training and recommendations
Multidisciplinary consultation meetings (RCP)
RCP implemented within FIMATHO network
Clinical national RCPs
Genetic RCPs
Regional RCPs
National diagnosis and care protocols (PNDS)
Therapeutic Education for Patients (TPE)
Oral feeding difficulties
What are oral feeding difficulties?
Weaning off tube feeding
FIMATHO actions as regards oral feeding difficulties
Directory of professionals Directory of professionals certified by DIU on oral feeding difficulties
University diplomas/inter-university diplomas
Useful resources
Research and financing
FIMATHO call for projects
Watch on call for projects
Help with editing or publishing scientific articles
Clinical research
French National Database of Rare Diseases (BNDMR) / BaMaRa
Registers
Literature watch
Europe and international
ERNICA
Other networks
News, Schedule and Newsletters
News and schedule
FIMATHO newsletters and research bulletins
Home
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Patient pathways
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Useful resources
Useful resources
Useful resources
Emergency cards and sheets
Oral feeding
Cartographies
Pathology booklets
Interactive tools
Flyers and information leaflets
Newsletters
Birth kit
Transition from adolescence to adulthood
Patient testimonials
The mother of Paul, who suffers from VACTERL syndrome
The mother of Sacha, who suffers from diaphragmatic hernia
The parents of Abigael, who suffers from short bowel syndrome
