Watch on call for projects - december 2020

European Joint Programme on Rare Diseases (EJP RD) - Networking Support Scheme (NSS) Call

Budget: €30,000

Project submission deadlineDecember 1, 2020 at 2:00 PM

The aim of the NSS in the EJP RD is to encourage sharing of knowledge on rare diseases and rare cancers of health care professionals, researchers and patients.

The NSS also aims to enable or increase the participation of usually underrepresented countries in Europe in new and in existing research networks on rare disease(s) or rare cancer(s). The aims of the NSS are in compliance with the vision and goals set by the International Rare Diseases Research Consortium (IRDiRC). The IRDiRC vision is: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention. To work towards this vision, IRDiRC has set three goals for the next decade.

The scheme will provide financial support to applicants for fostering organization of workshops or conferences for new research networks or existing/expanding research networks to strengthen collaborations and to enable exchange of knowledge.

European Joint Programme on Rare Diseases (EJP RD) - Call for Proposals 2021 “Social sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease”

Pre-proposal submission deadline: 16th February 2021

The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.

The topic of the call is Social sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease.

Research proposals should cover at least one of the following areas:

  • Health & social care services research to improve patient and familial/household health outcomes
  • Economic Impact of Rare diseases
  • Psychological and Social Impact of Rare diseases
  • Studies addressing the impact/burden of the delay in diagnosis and of the lack of therapeutic intervention
  • e-Health in rare diseases: Use of innovative technology systems for care practices in health and social services
  • Development and enhancement of health outcomes research methods in rare diseases
  • Effects of pandemic crisis and the global outbreak alert and response on the rare disease field, and the emergence of innovative care pathways in this regard.

More information about expected topics and type of studies: here

Projects shall involve a group of rare diseases or a single rare disease following the European definition i.e. a disease affecting not more than five in 10.000 persons in the European Community, EC associated states and Canada. Applicants are encouraged to assemble groups of rare diseases based on solid criteria and commonalities if these leverages added value in sharing resources or expertise and has the capacity to elucidate common disease mechanisms and therapeutic targets.

The maximum duration of the project is three years.