The Reference Centre is made up of a scientific committee and a management committee.

The management committee meets once a month.

The role of the scientific committee is to:

  • Evaluate research projects
  • Validate the agenda for the annual day
  • Discuss the CRMR strategy

The role of the management committee is to:

  • Write the CRMR newsletter
  • Organize the RCP
  • Give external opinions
  • Establish links with associations
  • Keep abreast of activities of the Centres
  • Write activity reports
  • Organize project meetings
  • Monitor functioning of the register

Members of the management committee:

  • F. GOTTRAND (Coordinator)
  • A. NICOLAS  (Paediatric Gastroenterologist)
  • M. AUMAR (Paediatric Gastroenterologist)
  • R. SFEIR (Surgeon)
  • M. HANAFI (Psychologist), A. LECOUFLE (Speech therapist)
  • K. GROFF (ARC)
  • N. BLOUIN (Secretary)
  • Permanent guest FIMATHO Network Coordinator (Audrey BARBET)
Equipe CRACMO

Le comité scientifique

Professor Frédéric GOTTRAND

Paediatric Gastroenterologist

Gastroenterology, hepatology and paediatric nutrition unit and Reference Centre for congenital œsophageal disorders and malformations in children

Hôpital Jeanne de Flandre
CHRU de Lille
Tel. +33 3 20 44 50 72
Fax +33 3 20 44 59 63

Doctor Aurélie LE MANDAT

Paediatric Surgeon

CHU de Toulouse
Department of Paediatric and Visceral Surgery
330 Avenue Grande Bretagne
31000 TOULOUSE CEDEX

Tel. +33 5 34 55 87 20

Professor Jean-Christophe DUBUS

Paediatric Lung specialist

Department of Paediatric Lung diseases
Hôpital La Timone
Rue St Pierre
13385 Marseille

Tel. +33 4 91 38 68 16

Doctor Virginie FOUQUET

Paediatric Surgeon

Hôpital Bicêtre
Paediatric Surgery

78 Rue du Général Leclerc
94270 Le Kremlin Bicêtre

Tel: +33 1 45 21 31 18
Fax: +33 4 45 21 31 89

Professor Alexandre LAPILLONNE

Neonatology Specialist

Hôpital Necker
Department of Neonatology
149 Avenue de Sèvres
75743 PARIS CEDEX 15

Tel. +33 1 40 44 19 75

Doctor Rony SFEIR

Paediatric Surgeon

Paediatric Surgery and Reference Centre for Congenital Oesophageal Disorders and Malformations

in children

Hôpital Jeanne de Flandre
CHRU de Lille

Tel. +33 3 20 44 40 91
 Fax. +33 3 20 44 50 74

Doctor Corinne BORDERON

Paediatric Gastroenterologist

CH de Clermont Ferrand
Department of Paediatrics A
1 Place Lucie Aubrac
63038 CLERMONT FERRAND

Tel. +33 4 73 75 00 25
Fax +33 4 73 75 00 30

Doctor Thomas GELAS

Paediatric Surgeon

Department of Paediatric Surgery
Hôpital Mère Enfant
59 BD Pinel
69677 BRON CEDEX 03

Tel. +33 4 27 26 92 17

Doctor Audrey NICOLAS

Paediatric Gastroenterologist

Gastroenterology, hepatology and paediatric nutrition unit and Reference Centre for congenital œsophageal disorders and malformations in children

Hôpital Jeanne de Flandre
CHRU de Lille

Tel. +33 3 20 44 68 85
Fax +33 3 20 44 61 34

Reference Centre teams

Coordinator

Children’s Unit - Pôle Enfant
Prof. F. GOTTRAND
Secretariat: +33 3 20 44 59 62 poste 30028
Email: centreoesophage@chru-lille.fr

Address: Hôpital Jeanne de Flandre - Avenue Eugène Avinée 59037 LILLE CEDEX

Department of Paediatrics

Gastroenterology

Dr. A. NICOLAS, Dr. D. GUIMBER, Dr. S. COOPMAN, Prof. D. TURCK
Secretariat: +33 3 20 44 68 85

Lung diseases
Dr. C. THUMERELLE, Dr. A. DESCHILDRE, Dr. S. LEJEUNE, Dr. C. MORDACQ
Secretariat: +33 3 20 44 50 72

Speech Therapist
Audrey LECOUFLE
Tel. +33 3 20 44 59 62 ext. 30052

Psychologist
Manel HANAFI
Tel. +33 3 20 44 59 62 ext. 30051

Digestive Functional Investigations

Dr. M. AUMAR
Secretariat: +33 3 20 44 50 68

Physical Medicine and Rehabilitation

Dr. L. GOTTRAND

Secretariat: +33 3 20 44 59 62 ext. 30028

Department of Children’s Surgery and Orthopaedics

Dr. R.SFEIR, Dr. M. BONNEVALLE
Secretariat: +33 3 20 44 49 74

ENT

Prof. P. FAYOUX
Secretariat: +33 3 20 44 47 10

Obstetrics

Prof. V. DEBARGE-HOUFLIN
Secretariat: +33 3 20 44 67 99

Institute of Pathology – Anatomical and Cytological Pathology

Prof. E. LETEURTRE
Secretariat: +33 3 20 44 49 85

Neonatal Medicine Unit

Prof. L. STORME, Dr. T. RAKZA
Secretariat: +33 3 20 44 62 13

Adult Medicine, Gastroenterology and Nutrition Unit - Hôpital Huriez

Prof. D. SEGUY, Dr. J. BRANCHE
Secretariat: +33 3 20 44 53 43

Adult General and Digestive Surgery - Hôpital Huriez

Prof. G. PIESSEN
Secretariat: +33 3 20 44 44 07 / +33 3 20 44 46 39

The Reference Centre is linked to:

  • Competence centres
  • Research units
  • Patient associations
  • Learned societies
  • The FIMATHO rare diseases network

It also cooperates at European and international levels (ERNICA and INoEA) with rare disease networks and patient associations.

Flowchart of the CRACMO reference centre