France's national network for rare abdominal and thoracic diseases and malformations

The website of the PolDiGenA (Adult Digestive Genetic Polyposis) reference centre, accredited for the first time in December 2023, is now...

The APEHDia association has developed an information...

After the 2020 edition in Houston (USA) and the 2022 edition in Glasgow (UK), this International Symposium dedicated to advances in research into...

The iCAN (International Children Advisory Network) 2022 Summit took place from July 11 to 15, 2022 in Lyon (France)! iCAN is an...

The International Congenital Diaphragmatic Hernia Symposium will be held from 27-29th April 2022 at the Technology and Innovation Centre,...

On Thursday 30 September – Friday 1 October 2021 the 5th ERNICA network meeting took place at the Faculty of Medicine, Le Centre Hospitalier...

CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the...

At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment...

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general...