France's national network for rare abdominal and thoracic diseases and malformations
The FIMATHO health network has been set up by the French Ministry of Solidarity and Health. It coordinates a network of stakeholders involved in the treatment of rare abdominal and thoracic diseases and malformations in both children and adults.
Latest news
Diaphragmatic Congenital Hernia International Symposium 2024
After the 2020 edition in Houston (USA) and the 2022 edition in Glasgow (UK), this International Symposium dedicated to advances in research into...
Back to the iCAN 2022 Summit!
The iCAN (International Children Advisory Network) 2022 Summit took place from July 11 to 15, 2022 in Lyon (France)! iCAN is an...
Diaphragmatic Congenital Hernia International Symposium 2022
The International Congenital Diaphragmatic Hernia Symposium will be held from 27-29th April 2022 at the Technology and Innovation Centre,...
A look back at the ERNICA 2021 meeting!
On Thursday 30 September – Friday 1 October 2021 the 5th ERNICA network meeting took place at the Faculty of Medicine, Le Centre Hospitalier...
RAREsummit2021
CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the...
Making the unseen seen: Rare disease and the lessons learned from the COVID-19 pandemic
At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment...
Rare disease day 2021: all mobilized under the same banner!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general...
Publication of an ERNICA animation for parents and families!
The European Reference Network on Rare Inherited and Congenital Anomalies (...
RAREfest20: it’s this weekend !
RAREfest20 is a free, virtual and interactive festival featuring interactive science, technology, advocacy and arts exhibition linked with...
Upcoming events
Reference centres
MaRDi reference centre
Rare Digestive Diseases and Disorders
Diaphragmatic Hernias reference centre
Diaphragmatic Hernias
CRACMO reference centre
Chronic and Malformative Diseases and Disorders of the Oesophagus
PaRaDis reference centre
Rare Pancreatic Diseases and Disorders
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