France's national network for rare abdominal and thoracic diseases and malformations

The iCAN (International Children Advisory Network) 2022 Summit took place from July 11 to 15, 2022 in Lyon (France)! iCAN is an...

The International Congenital Diaphragmatic Hernia Symposium will be held from 27-29th April 2022 at the Technology and Innovation Centre,...

On Thursday 30 September – Friday 1 October 2021 the 5th ERNICA network meeting took place at the Faculty of Medicine, Le Centre Hospitalier...

CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the...

At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment...

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general...

The European Reference Network on Rare Inherited and Congenital Anomalies (...

RAREfest20 is a free, virtual and interactive festival featuring interactive science, technology, advocacy and arts exhibition linked with...

The FIMATHO health network is pleased to announce the launch of the English version of its website! Almost all the website has...