France's national network for rare abdominal and thoracic diseases and malformations
The FIMATHO health network has been set up by the French Ministry of Solidarity and Health. It coordinates a network of stakeholders involved in the treatment of rare abdominal and thoracic diseases and malformations in both children and adults.
Latest news
RAREsummit2021
CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the...
Making the unseen seen: Rare disease and the lessons learned from the COVID-19 pandemic
At the beginning of the Covid-19 pandemic of early 2020, a group of concerned advocates came together to take Action for Rare Disease Empowerment...
Rare disease day 2021: all mobilized under the same banner!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general...
Publication of an ERNICA animation for parents and families!
The European Reference Network on Rare Inherited and Congenital Anomalies (...
RAREfest20: it’s this weekend !
RAREfest20 is a free, virtual and interactive festival featuring interactive science, technology, advocacy and arts exhibition linked with...
The FIMATHO website becomes bilingual!
The FIMATHO health network is pleased to announce the launch of the English version of its website! Almost all the website has...
Upcoming events
Reference centres
MaRDi reference centre
Rare Digestive Diseases and Disorders
Diaphragmatic Hernias reference centre
Diaphragmatic Hernias
CRACMO reference centre
Chronic and Malformative Diseases and Disorders of the Oesophagus
PaRaDis reference centre
Rare Pancreatic Diseases and Disorders
Newsletter
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