AF DCSI - Life without Sugar, was created in 2015, bringing together patients affected by Congenital Sucrase-Isomaltase Deficiency (CSID), which causes malabsorption of two types of sugars due to enzyme deficiencies in the duodenum:

• sucrose
• starch

AF DCSI founded under the Association Law 1901 for non-profit organisations, is a member of the rare diseases group Alliance Maladies Rares.

Support for children and adults with this disorder:

Sharing experiences relating to diet management, hypoglycaemia, chronic respiratory infections,  new food-related intolerances, exchange of recipes to relieve the monotony of limited food choices.

Coping with hunger management, and feelings of frustration due to exclusion by family and the social entourage.

Offering nutritional help tools.

Sharing of information on the disorder and its consequences:

Informing the general public, medical fraternity, school environments, pharmaceutical and food and agriculture industries.

The aim is to facilitate diagnosis, and help sufferers navigate their care, daily lives and social activities.

Contributing to research on treatment solutions:

Digestive enzyme supplements to limit malnutrition and lack of carbohydrates

Participation with international associations:

Sharing of experience and solutions.