AFMAH

Founded on 26 May 2000, the AFMAH, French-speaking Association for Hirschsprung disease, was formed under the Association Law 1901 for non-profit-making organisations, with the following aims:

  • Provide representation for patients and their families

AFMAH is the French-speaking advocate for all patients and families affected by Hirschsprung disease.

  • Develop medical information for families    

Via their Scientific Committee representing health personnel working with Hirschsprung disease, AFMAH provides detailed and up-to-date information for all.

  • Facilitate contact between families

In difficult times it is important to be linked in with other families who are facing similar problems. The strength of testimony is irreplaceable.

  • Contribute to research

To improve management of young patients, offer other treatment options, detect Hirschsprung disease earlier, and decode the mode of genetic transmission, medical research is essential.

 

L’AFMAH fait partie des filières de santé NEUROSPHINX (troubles sphinctériens) et FIMATHO (malformations abdomino-thoraciques).

Contact

Ms. NOVAT Carole, President
Tel. 06 03 38 53 74 
Email : afmah.info@gmail.com

Website : hirschsprung.asso.fr