Founded in 1991, the main objective of the Association POLYPOSES FAMILIALES France is to inform and assist patients and families dealing with familal polyposis.
Supported by doctors and researchers, the Association participates actively in raising awareness of basic research carried out, the results, and different treatment options available.
Today in France, rare digestive polyposis affects around 3,000 people suffering from 10 or so known pathologies. Polyposis often occurs during childhood, or is detected during family screening. Incidence ranges from 1/10,000 to 1/200,000 births each year. It requires care by multidisciplinary teams (geneticists, gastroenterologists, surgeons, paediatricians, psychologists) since polyposis care is demanding: it calls for regular monitoring and major surgery as a preventative measure. While no treatment is currently available to prevent the appearance of polyps, early and ongoing observation allows them to be treated before they deteriorate. Without appropriate treatment, these polyps will manifest as cancer in the majority of patients before the age of 40.
Familial Adenomatous Polyposis France:
- Familial Adenomatous Polyposis associated with APC,
- Familial Adenomatous Polyposis associated with MutYH,
- Juvenile Polyposis,
- Peutz-Jeghers Syndrome,
- Cowden Syndrome.