News

11 june 2024 : annual conference of MaRDi centers

Hello everyone,

We are pleased to invite you to the Annual Day of the MaRDi Centers, which will take place on June 11, 2024, in Lille (France), at the multimedia amphitheater of the Faculty of Medicine Henri Warembourg, Avenue Eugène Avinée - 59120 Loos, Lille.

You can also participate in the meeting remotely. In both cases, registration is free but mandatory via this link.

The program for the day:

9:30 am - 10:00 am: Annual Review and Updates

Prof. Jean-Pierre HUGOT and Dr. Naim DRID (Paris)

10:00 am - 13:00 pm: Achievements of Centers and Associations

  1. Pediatric autoimmune pancreatitis, Dr. Guillemette D'ARGENTRE and Dr. Laure BRIDOUX-HENNO (Rennes),10:00 am – 10:20 am
  2. e-ETP MICI children, Dr. Stéphanie COOPMAN and Dr. Christine MARTINEZ-VINSON (Lille and Paris),10:20, am– 10:40 am
  3. Impact of perinatal exposure to titanium nanoparticles on adult intestinal development and homeostasis, Frederick BARREAU (Toulouse),10:40 am– 11:00 am 
  4. MaRDi Research Pipeline, Dr. Hélène LENGLINE and Mrs. Servane ALIROL (Paris),11:00 am - 11:20 am

11h20 – 11h35 : Break

  1. State of botryomycome in children with NPAD, preliminary data, Dr. Pierre POINSOT (Lyon) 11:35 am - 11:55 am
  2. MaRDi Welcome booklets, Mrs. Manon PICCHI (Marseille),  11:55 am - 12:15 pm
  3. Parenteral training platform, Dr. Marie Edith COSTE (Marseille) and Prof. Noël PERETTI (Lyon); 12:15 pm - 12:35 pm
  4. Registered and off-label drugs: use or the limits of care, Mrs. Laurence LANÇON (Marseille), 12:35 pm - 12:45 pm
  5. MaRDi website, Dr. Naim DRID and Mrs. Marine GONZALEZ (Paris and Lille),12:45 pm- 13:00 pm

1:00 pm – 2.00 pm : Break
Afternoon: 2:00 pm - 5:30 pm

MaRDi / Fimatho Conference: "Crossed Perspectives on Research in Rare Diseases"

  1. Introduction
  2. Towards pediatric clinical research adapted to young patients and their families, Ségolène GAILLARD (Project Manager of the Kids France Program, Lyon):
  3. Small sample size clinical trials, Corinne ALBERTI (Professor, Robert Debré Hospital)
  4. The industry's perspective, Ludovic DUPONT (Medical Department, Amgen)
  5. The researcher's perspective, Pascal DE SANTA BARBARA (Research Team Leader on POIC)
  6. The perspective of associations and patients, Anne BUISSON (Director of the AFA Crohn RCH France association)

Closing at 5:30 pm

We look forward to seeing you there!


CRMR MaRDI
Robert-Debré