Replays and presentations of the MaRDi Centers conference

Dear Community,

We are pleased to invite you to consult the presentations and replays of the MaRDi Centers conference.

Annual Review and Updates

Prof. Jean-Pierre HUGOT and Dr. Denis DRID (Paris), Video : 🎥

 Achievements of Centers and Associations

  1. Pediatric autoimmune pancreatitis, Dr. Guillemette D'ARGENTRE and Dr. Laure BRIDOUX-HENNO (Rennes)Video 🎥 
  2. e-ETP MICI children, Dr. Stéphanie COOPMAN and Dr. Christine MARTINEZ-VINSON (Lille and Paris), 
  3. Impact of perinatal exposure to titanium nanoparticles on adult intestinal development and homeostasis, Frederick BARREAU (Toulouse),    Video : 🎥
  4. MaRDi Research Pipeline, Dr. Hélène LENGLINE and Mrs. Servane ALIROL (Paris),  Video 🎥 
  5. State of botryomycome in children with NPAD, preliminary data, Dr. Pierre POINSOT (Lyon)Video 🎥 
  6. MaRDi Welcome booklets, Mrs. Manon PICCHI (Marseille),   Video 🎥 
  7. Parenteral training platform, Dr. Marie Edith COSTE (Marseille) and Prof. Noël PERETTI (Lyon)Video 🎥 
  8. Registered and off-label drugs: use or the limits of care, Mrs. Laurence LANÇON (Marseille)Video 🎥 
  9. MaRDi website, Dr. Denis DRID and Mrs. Marine GONZALEZ (Paris and Lille).

MaRDi / Fimatho Conference: "Crossed Perspectives on Research in Rare Diseases"

  1. Towards pediatric clinical research adapted to young patients and their families, Ségolène GAILLARD (Project Manager of the Kids France Program, Lyon): Video 🎥 
  2. Small sample size clinical trials, Corinne ALBERTI (Professor, Robert Debré Hospital) ,  Video 🎥 
  3. The industry's perspective, Ludovic DUPONT (Medical Department, Amgen) ,  Video 🎥 
  4. The researcher's perspective, Pascal DE SANTA BARBARA (Research Team Leader on POIC),  Video 🎥 
  5. The perspective of associations and patients, Anne BUISSON (Director of the AFA Crohn RCH France association),  Video 🎥 


We look forward to seeing you next year!

CRMR MaRDI
Robert-Debré