Hello everyone,
The annual conference of FIMATHO network and MaRDi, PolDiGenA, CRACMO, and Diaphragmatic Hernia and Hepatocele Reference Centers were held in Paris on June 2- 4, 2025.
The conference provided an opportunity to review the latest news on rare abdomino-thoracic diseases and to showcase the projects carried out by the FIMATHO network's stakeholders. This year, the FIMATHO network celebrated its 10th anniversary\! The meetings were held exclusively in person, and many of you participated: thank you to everyone!
The video replays and the slideshows presented during the various sessions are now available online. You can also view the news published by FIMATHO to see the replays and slideshows from all the centers.
Monday, June 2, 2025: Announcing and Re-announcing the Diagnosis ( Thematic Day 🎥)
Access the playlist (in French)
Conferene organized jointly by FIMATHO and the MaRDi reference center
- Introduction: testimonals
- Cross-views on prenatal announcement
- The child's place in the announcement: specificities, when the child is young, a teenager, and the place of siblings
- Importance of re-announcement to adolescents
- Cross-views on announcement to adults: specificities and the role of caregivers
- The announcement: mechanisms and psychological stakes for the patient...and the caregiver
- How to support the announcement (tools, therapeutic patient education, the role of associations, etc.)
- Round table "how far to go in the announcement"
Tuesday, June 3, afternoon: MaRDi reference center 🎥
Access the playlist (in French)
- Update on current MaRDi projects and progress of the year
- Presentation of an engaged patient, her role and experience after 1 year
- Review of the first Hirschsprung's Disease conference
- Innovative approach to oral mRNA therapy to treat Microvillus Inclusion Disease (MVID): developing a pre-clinical proof of concept
- CIPO Conference, 12 years of progress (2013-2025)
- Advances in understanding CIPO: integrating genetic and histological data for better management
- Presentation of the Gastroparesis PNDS
- Presentation of the Nutriswitch software
- Round table and sharing of experience: The issue of misuse and risky behaviors (addiction), Discussion on data for "children who have become adults", Presentation of a case of pain and substance use problems, Talk by an addiction specialist/psychologist on the mechanisms that promote addiction, Round table: family, psychiatrist, addiction specialist, pain physician, adult and pediatric physician.