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The network
Introduction
Our actions
Network stakeholders
The FIMATHO project team
Rare disease reference and competence centres
Patients associations
Research laboratories
Learned societies
Our partners
The other rare disease health networks
Institutions
ERNICA
INoEA
Rare disease expertise platforms and overseas coordination platforms
Useful resources
Rare Diseases
Pancreas
Pancreatic Cysts
Genetic pancreatitis
Autoimmune Pancreatitis
Hypertriglyceridemia-induced Pancreatitis
Cystic Dystrophy in Heterotopic Pancreas
Oesophagus
Oesophageal atresia
Congenital tracheo-oesophageal fistula
Congenital oesophageal stenosis
Idiopathic achalasia of the oesophagus
Eosinophilic oesophagitis
Diaphragm
Diaphragmatic hernia
Diaphragmatic eventration
Digestive system
Crohn’s disease
Ulcerative colitis
Chronic Intestinal Pseudo-obstruction
Hirschsprung's disease
Short bowel syndrome
Familial adenomatous polyposis
Juvenile polyposis
Peutz-Jeghers syndrome
Care pathways
Transition from adolescence to adulthood
Oral feeding difficulties
what are oral feeding difficulties?
Weaning off tube feeding
FIMATHO actions as regards oral feeding difficulties
Directory of professionals certified by DIU on oral feeding difficulties
Expertise centres
Medical-social
Therapeutic Patient Education (TPE)
Lodging map
Emergency cards
Research and recommendations
Fundamental and clinical research
French National Database of Rare Diseases (BNDMR) / BaMaRa
Registers
Multidisciplinary consultation meetings (RCP)
RCP implemented within FIMATHO network
Clinical national RCPs
Genetic RCPs
Regional RCPs
National diagnosis and care protocols (PNDS)
Literature watch
Training
Therapeutic Education for Patients (TPE)
Oral feeding difficulties
What are oral feeding difficulties?
Weaning off tube feeding
FIMATHO actions as regards oral feeding difficulties
Directory of professionals certified by DIU on oral feeding difficulties
"Expert Parent" Training
University diplomas/inter-university diplomas
Support for projects
FIMATHO call for projects
Help with editing or publishing scientific articles
News, Schedule and Newsletters
News and schedule
FIMATHO newsletters and research bulletins
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REUNION DES FAMILLES 15 11 2023
REUNION DES FAMILLES 15 11 2023
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