Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
L’Alliance Maladies Rares, which coordinates the rare disease day in France, brings together all rare disease stakeholders under the same banner from 6 February to 28 February 2021.
Members of rare diseases platform, volunteers, members associations, rare diseases networks...will disseminate and relay the campaign entitled "Let's make an alliance for rare diseases: #YESWENAME" on the social networks Facebook, Twitter, LinkedIn, Instagram and websites.
More information about rare disease day : https://www.rarediseaseday.org/