FIMATHO (en)
 
  • Contact us
  • Directory
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
      • The FIMATHO project team
      • Rare disease reference and competence centres
      • Patients associations
      • Research laboratories
      • Learned societies
    • Our partners
      • The other rare disease health networks
      • Institutions
      • European networks
  • Rare Diseases
    • Pancreas
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
    • Oesophagus
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
    • Diaphragm
      • Diaphragmatic hernia
      • Diaphragmatic eventration
    • Digestive system
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
  • Patient pathways
    • Patients associations
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
      • what are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • Rare disease centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Useful resources
  • Training and recommendations
    • Multidisciplinary consultation meetings (RCP)
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • National diagnosis and care protocols (PNDS)
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
      • What are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals Directory of professionals certified by DIU on oral feeding difficulties
    • University diplomas/inter-university diplomas
    • Useful resources
  • Research and financing
    • FIMATHO call for projects
    • Watch on call for projects
    • Help with editing or publishing scientific articles
    • Clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Literature watch
  • Europe and international
    • ERNICA
    • Other networks
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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  • Fimatho
    • Introduction
    • Our actions
      • The FIMATHO project team
      • Rare disease reference and competence centres
      • Patients associations
      • Research laboratories
      • Learned societies
    • Our events
      • The other rare disease health networks
      • Institutions
      • European networks
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
      • Diaphragmatic hernia
      • Diaphragmatic eventration
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
    • Transition from adolescence to adulthood
      • what are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • Rare disease centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Useful resources
      • Emergency cards and sheets
      • Birth kit
      • Pathology booklets
      • Oral feeding
      • Flyers and information leaflets
      • Interactive tools
      • Transition from adolescence to adulthood tools
      • Cartographies
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • National diagnosis and care protocols (PNDS)
    • Therapeutic Education for Patients (TPE)
      • ETP MARDI
      • ETP CRACMO
      • ETP HERNIE
      • ETP PANCREAS
      • ETP TRANSVERSAUX
      • Auvergne-Rhône-Alpes TPE
      • Bourgogne-Franche-Comté region TPE
      • Brittany region TPE
      • Greater Eastern France region TPE
      • Hauts-de-France region TPE
      • Ile-de-France region TPE
      • Occitanie region TPE
      • Provence-Alpes-Côte-d'Azur region TPE
      • What are oral feeding difficulties?
      • Next oral session
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals Directory of professionals certified by DIU on oral feeding difficulties
    • University diplomas/inter-university diplomas
    • Useful resources
    • FIMATHO call for projects
    • Watch on call for projects
    • Help with editing or publishing scientific articles
    • Clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Literature watch
    • ERNICA
    • Other networks
    • News and schedule
      • Publication of an ERNICA animation for parents and families!
      • RAREfest20: it’s this weekend !
      • The FIMATHO website becomes bilingual!
    • FIMATHO newsletters and research bulletins

FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

  • Legal information
  • Confidentiality policy
  • Removal of personal information
  • Sitemap
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Diaphragm
    • Digestive system
  • Patient pathways
    • Patients associations
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
    • Rare disease centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Useful resources
  • Training and recommendations
    • Multidisciplinary consultation meetings (RCP)
    • National diagnosis and care protocols (PNDS)
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
    • University diplomas/inter-university diplomas
    • Useful resources
  • Research and financing
    • FIMATHO call for projects
    • Watch on call for projects
    • Help with editing or publishing scientific articles
    • Clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Literature watch
  • Europe and international
    • ERNICA
    • Other networks
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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