FIMATHO (en)
 
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      • FIMATHO project team and governance
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      • The other rare disease health networks
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  • Rare Diseases
    • Pancreas
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
    • Oesophagus
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
    • Abdominal wall or diaphragm malformation
      • Diaphragmatic hernia
      • Diaphragmatic eventration
    • Digestive system
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
  • Care pathways
    • Finding your expert centre
    • Patient organisations
    • Medical-social
    • Feeding disorders
      • What are pediatric feeding disorders?
      • FIMATHO's actions regarding pediatric feeding disorders
      • Directory of qualified professionals with a University Diploma in Pediatric feeding Disorders
      • Weaning off tube feeding
    • Therapeutic Patient Education
      • Introduction to TPE
      • How to implement a TPE programme?
      • TPE in the network
    • Transition from adolescence to adulthood
    • National diagnosis and care protocols (PNDS)
    • Lodging map
    • Emergency cards and guidelines
  • Training and recommendations
    • National diagnosis and care protocols (PNDS)
    • Multidisciplinary consultation meetings (RCP)
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • Feeding disorders
      • What are pediatric feeding disorders?
      • FIMATHO's actions regarding pediatric feeding disorders
      • Directory of qualified professionals with a University Diploma in Pediatric feeding Disorders
      • Weaning off tube feeding
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Research and support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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  • Fimatho
    • Introduction
    • Our actions
      • FIMATHO project team and governance
      • Rare disease reference and competence centres
      • Patient organisations
      • Research laboratories
      • Academic societies
    • Our events
      • The other rare disease health networks
      • Rare disease expertise platforms and overseas coordination platforms
      • Institutions
      • ERNICA
      • INoEA
    • Useful resources
      • Birth kit
      • Emergency cards and sheets
      • Pathology booklets
      • Oral feeding
      • Flyers and information leaflets
      • Interactive tools
      • Transition from adolescence to adulthood tools
      • Cartographies
      • Therapeutic Patient Education Tools
    • Order form
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
      • Diaphragmatic hernia
      • Diaphragmatic eventration
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
    • Finding your expert centre
    • Medical-social
      • What are pediatric feeding disorders?
      • FIMATHO's actions regarding pediatric feeding disorders
      • Directory of qualified professionals with a University Diploma in Pediatric feeding Disorders
      • Weaning off tube feeding
      • Introduction to TPE
      • How to implement a TPE programme?
      • TPE in the network
    • Transition from adolescence to adulthood
    • National diagnosis and care protocols (PNDS)
    • Lodging map
    • Emergency cards and guidelines
    • National diagnosis and care protocols (PNDS)
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
      • What are pediatric feeding disorders?
      • FIMATHO's actions regarding pediatric feeding disorders
      • Next oral session
      • Directory of qualified professionals with a University Diploma in Pediatric feeding Disorders
      • Weaning off tube feeding
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
    • Watch on call for projects
    • News and schedule
      • Visit the PolDiGenA reference centre website now!
      • Vidéo "What is a diaphragmatic hernia?"
      • Diaphragmatic Congenital Hernia International Symposium 2024
      • Back to the iCAN 2022 Summit!
      • Diaphragmatic Congenital Hernia International Symposium 2022
      • A look back at the ERNICA 2021 meeting!
      • RAREsummit2021
      • Making the unseen seen: Rare disease and the lessons learned from the COVID-19 pandemic
      • Rare disease day 2021: all mobilized under the same banner!
      • Publication of an ERNICA animation for parents and families!
      • RAREfest20: it’s this weekend !
      • The FIMATHO website becomes bilingual!
    • FIMATHO newsletters and research bulletins

FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

  • Legal information
  • Confidentiality policy
  • Removal of personal information
  • Sitemap
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
    • Useful resources
    • Order form
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Abdominal wall or diaphragm malformation
    • Digestive system
  • Care pathways
    • Finding your expert centre
    • Patient organisations
    • Medical-social
    • Feeding disorders
    • Therapeutic Patient Education
    • Transition from adolescence to adulthood
    • National diagnosis and care protocols (PNDS)
    • Lodging map
    • Emergency cards and guidelines
  • Training and recommendations
    • National diagnosis and care protocols (PNDS)
    • Multidisciplinary consultation meetings (RCP)
    • Feeding disorders
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Research and support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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