FIMATHO (en)
 
  • Contact us
  • Directory
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
      • The FIMATHO project team
      • Rare disease reference and competence centres
      • Patients associations
      • Research laboratories
      • Learned societies
    • Our partners
      • The other rare disease health networks
      • Institutions
      • ERNICA
      • INoEA
      • Rare disease expertise platforms and overseas coordination platforms
    • Useful resources
  • Rare Diseases
    • Pancreas
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
    • Oesophagus
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
    • Diaphragm
      • Diaphragmatic hernia
      • Diaphragmatic eventration
    • Digestive system
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
  • Care pathways
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
      • what are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • Expertise centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Emergency cards
  • Research and recommendations
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Multidisciplinary consultation meetings (RCP)
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • National diagnosis and care protocols (PNDS)
    • Literature watch
  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
      • What are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
  • Home /
  • Sitemap

Sitemap

  • Fimatho
    • Introduction
    • Our actions
      • The FIMATHO project team
      • Rare disease reference and competence centres
      • Patients associations
      • Research laboratories
      • Learned societies
    • Our events
      • The other rare disease health networks
      • Institutions
      • ERNICA
      • INoEA
      • Rare disease expertise platforms and overseas coordination platforms
    • Useful resources
      • Emergency cards and sheets
      • Birth kit
      • Pathology booklets
      • Oral feeding
      • Flyers and information leaflets
      • Interactive tools
      • Transition from adolescence to adulthood tools
      • Cartographies
      • Therapeutic Patient Education Tools
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
      • Diaphragmatic hernia
      • Diaphragmatic eventration
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
    • Transition from adolescence to adulthood
      • what are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • Expertise centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Emergency cards
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • National diagnosis and care protocols (PNDS)
    • Literature watch
    • Therapeutic Education for Patients (TPE)
      • ETP MARDI
      • ETP CRACMO
      • ETP HERNIE
      • ETP PANCREAS
      • ETP TRANSVERSAUX
      • Auvergne-Rhône-Alpes TPE
      • Bourgogne-Franche-Comté region TPE
      • Brittany region TPE
      • Greater Eastern France region TPE
      • Hauts-de-France region TPE
      • Ile-de-France region TPE
      • Occitanie region TPE
      • Provence-Alpes-Côte-d'Azur region TPE
      • What are oral feeding difficulties?
      • Next oral session
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
    • Watch on call for projects
    • News and schedule
      • Visit the PolDiGenA reference centre website now!
      • Vidéo "What is a diaphragmatic hernia?"
      • Diaphragmatic Congenital Hernia International Symposium 2024
      • Back to the iCAN 2022 Summit!
      • Diaphragmatic Congenital Hernia International Symposium 2022
      • A look back at the ERNICA 2021 meeting!
      • RAREsummit2021
      • Making the unseen seen: Rare disease and the lessons learned from the COVID-19 pandemic
      • Rare disease day 2021: all mobilized under the same banner!
      • Publication of an ERNICA animation for parents and families!
      • RAREfest20: it’s this weekend !
      • The FIMATHO website becomes bilingual!
    • FIMATHO newsletters and research bulletins

FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

  • Legal information
  • Confidentiality policy
  • Removal of personal information
  • Sitemap
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
    • Useful resources
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Diaphragm
    • Digestive system
  • Care pathways
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
    • Expertise centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Emergency cards
  • Research and recommendations
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Multidisciplinary consultation meetings (RCP)
    • National diagnosis and care protocols (PNDS)
    • Literature watch
  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
Copyright © 2025 FIMATHO (en). Realisation neoweb.fr