The project team coordinates the network’s day-to-day work and ensures implementation of the strategic orientations defined by the management committee.

It is composed of:

A medical coordinator

The coordinator’s main missions include the regular monitoring of the network’s projects, representing the network with agencies (DGOS, etc.), chairing meetings of the management and scientific committees, etc.

A project leader

The project leader is in charge of coordinating the project team. She monitors all of the network's actions and projects. She is in contact with the various stakeholders of the network (network members, associations, other networks, external service providers, etc.). Alongside the coordinator, she represents the network with institutions and with the Ministry of Health. She ensures budget monitoring for the network and collaborates in the compilation of official documents.

Four regional liaison officers

The network's four liaison officers are based regionally to be as close as possible to network stakeholders. They are each responsible for working groups within the network (oral feeding, transition from adolescence to adulthood, medico-social issues, etc.).

Recruitment of the North Region liaison officer underway.

An administrative assistant

She performs all administrative tasks necessary for the proper functioning of the network. Its main missions are: bookkeeping, processing of orders, support for the team in organising the network’s projects. 

Two clinical research associates

The main mission of the clinical research associate (CRA) of the FIMATHO network is to help set up the Banque Nationale des Maladies Rares (BNDMR) throughout the country. The CRA is the privileged interlocutor of the rare disease expert centres concerning the BNDMR. She works in close collaboration with the regional task forces.

Recruitment of the Southern Region CRO underway.

A speech therapist

Her missions are to raise awareness of paediatric feeding disorders among health professionals, to improve the quality of life of patients affected by these disorders, to support families and to conduct innovative projects on these orality issues. She is particularly interested in the latest scientific publications in the field to ensure the relevance of FIMATHO network's proposals to patients, families and professionals. 

Team organisational chart

Prof. Frédéric Gottrand
Prof. Frédéric GottrandNetwork coordinator
Ms Audrey Barbet
Ms Audrey BarbetProject leader
Ms Virginie Godec
Ms Virginie GodecAdministrative assistant
Ms Aurélie Coussaert
Ms Aurélie CoussaertLiaison officer – Ile de France - Strasbourg
Ms Marine Gonzalez
Ms Marine GonzalezLiaison officer - South-East
Ms Ariane David
Ms Ariane DavidLiaison officer - North-West
Ms Charlotte Pereira De Moura
Ms Charlotte Pereira De MouraSpeech Therapist
Ms N'Diaye Ba
Ms N'Diaye BaClinical Research Associate