Ten patients associations are an integral part of the FIMATHO network. They ensure the link between patients and health care professionals. Most of them are also members of the collective Alliance Maladies Rares.

The associations in the network meet every two months: this time for discussion and sharing helps launch cross-functional  projects within the network (information kits provided to parents at birth, set-up of information days regarding oral feeding difficulties, transition from adolescence to adulthood, etc.). The representative from the associations sits on the management committee.

The associations AFAO, APEHDIA and La Vie par un Fil are members of the European rare disease network "ERNICA". 

François Aupetit association

François Aupetit association

Association Française de l'Astrésie de l'Œsophage (French Association on Oesophageal Atresia)

Association Française de l'Astrésie de l'Œsophage (French Association on Oesophageal Atresia)

Association Francophone de la Maladie de Hirschsprung (Francophone Hirschsprung's disease association)

Association Francophone de la Maladie de Hirschsprung (Francophone Hirschsprung's disease association)

AHFyMaGe

AHFyMaGe

Association POLYPOSES FAMILIALES France (Familial polyposis France association)

Association POLYPOSES FAMILIALES France (Familial polyposis France association)

Groupe MIAM-MAIM

Groupe MIAM-MAIM

La vie par un fil

La vie par un fil

POIC association

POIC association

AF DCSI association

AF DCSI association