FIMATHO (en)
 
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  • Rare Diseases
    • Pancreas
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
    • Oesophagus
      • Oesophageal atresia
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      • Idiopathic achalasia of the oesophagus
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    • Diaphragm
      • Diaphragmatic hernia
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    • Digestive system
      • Crohn’s disease
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      • Hirschsprung's disease
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      • Juvenile polyposis
      • Peutz-Jeghers syndrome
  • Care pathways
    • Transition from adolescence to adulthood
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      • what are oral feeding difficulties?
      • Weaning off tube feeding
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      • Directory of professionals certified by DIU on oral feeding difficulties
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      • RCP implemented within FIMATHO network
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  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
      • What are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
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    • FIMATHO call for projects
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    • News and schedule
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  • Publications

JA CRACMO

11 documents correspond to your search

1- Actualités Cracmo

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2- Table ronde Que faire du diagnostic prénatal

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3- Les meilleurs papiers de l’année concernant l’atrésie de l’œsophage en chirurgie

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3- Les meilleurs papiers de l’année concernant l’atrésie de l’œsophage en pédiatrie

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4- Actualités du Registre

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5- Feed Easy (Feeding disorder in children with esophageal atresia Study)

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6- Atrésie de l’œsophage chez les nouveau-nés de moins de 1500 g en France

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7- Devenir des nouveau-nés atteints d’atrésie de l’œsophage combinée à une atrésie duodénale

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8- Evaluation du retentissement respiratoire

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9-Evaluation de la croissance et du statut nutritionnel à l'âge d’un an des patients opérés d’une atrésie de l’œsophage

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10- Impact psychologique du diagnostic anténatal chez les parents d’enfant opéré d’une atrésie de l’œsophage (DAN-AO)

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FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

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  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
    • Useful resources
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Diaphragm
    • Digestive system
  • Care pathways
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
    • Expertise centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Emergency cards
  • Research and recommendations
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Multidisciplinary consultation meetings (RCP)
    • National diagnosis and care protocols (PNDS)
    • Literature watch
  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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