FIMATHO (en)
 
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  • Rare Diseases
    • Pancreas
      • Pancreatic Cysts
      • Genetic pancreatitis
      • Autoimmune Pancreatitis
      • Hypertriglyceridemia-induced Pancreatitis
      • Cystic Dystrophy in Heterotopic Pancreas
    • Oesophagus
      • Oesophageal atresia
      • Congenital tracheo-oesophageal fistula
      • Congenital oesophageal stenosis
      • Idiopathic achalasia of the oesophagus
      • Eosinophilic oesophagitis
    • Diaphragm
      • Diaphragmatic hernia
      • Diaphragmatic eventration
    • Digestive system
      • Crohn’s disease
      • Ulcerative colitis
      • Chronic Intestinal Pseudo-obstruction
      • Hirschsprung's disease
      • Short bowel syndrome
      • Familial adenomatous polyposis
      • Juvenile polyposis
      • Peutz-Jeghers syndrome
  • Care pathways
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
      • what are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • Expertise centres
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    • Therapeutic Patient Education (TPE)
    • Lodging map
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  • Research and recommendations
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Multidisciplinary consultation meetings (RCP)
      • RCP implemented within FIMATHO network
      • Clinical national RCPs
      • Genetic RCPs
      • Regional RCPs
    • National diagnosis and care protocols (PNDS)
    • Literature watch
  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
      • What are oral feeding difficulties?
      • Weaning off tube feeding
      • FIMATHO actions as regards oral feeding difficulties
      • Directory of professionals certified by DIU on oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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Médico-social

4 documents correspond to your search

Livret "Et après l'annonce du handicap de mon enfant..?"

Les dispositifs destinés aux parents et aux aidant familiaux. Edité en Octobre 2019. Association...

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Grille d’entretien standardisée à destination des assistantes sociales

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Tutoriel pour remplir les formulaires d’aides financières

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Carnet de liaison qui retrace le suivi médical de l’enfant

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FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

  • Legal information
  • Confidentiality policy
  • Removal of personal information
  • Sitemap
  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
    • Useful resources
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Diaphragm
    • Digestive system
  • Care pathways
    • Transition from adolescence to adulthood
    • Oral feeding difficulties
    • Expertise centres
    • Medical-social
    • Therapeutic Patient Education (TPE)
    • Lodging map
    • Emergency cards
  • Research and recommendations
    • Fundamental and clinical research
    • French National Database of Rare Diseases (BNDMR) / BaMaRa
    • Registers
    • Multidisciplinary consultation meetings (RCP)
    • National diagnosis and care protocols (PNDS)
    • Literature watch
  • Training
    • Therapeutic Education for Patients (TPE)
    • Oral feeding difficulties
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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