Birth kit

To assist parents in the treatment of their children during their first moments of life, the FIMATHO network, in collaboration with patients associations and professionals, has designed an introduction kit intended for parents of children suffering from rare abdominal and thoracic diseases or malformations.

This kit includes:

  • a descriptive "birth kit" booklet
  • a small spoon
  • a teddy bear
  • a practical guide on oral feeding difficulties
  • a useful resources leaflet
  • a flyer from the "Miam Miam" patients association
  • a FIMATHO network flyer
  • a practical guide on the pathology
  • a "Your opinion matters" questionnaire to fill out for us
  • one or more practical guides which is/are added depending on the child's pathology

Descriptive booklet of the birth kit