- The network
 - Rare Diseases
 - Care pathways
 - Research and recommendations
 - Training
 - Support for projects
 - News, Schedule and Newsletters
 
Schedule of events
                    
                        27 November 2025                            
                            09h 00                            
                                            
                
                
                    
                        29 November 2025                            
                            17h 30                                                
                
            World Orphan Drug Congress - Europe 2025
     Lieu
    RAI Convention Centre, Amsterdam
    
        The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.
More information on the congress : click here