Title: Therapeutic education for teens being treated for a complex congenital cardiovascular disease in order to support their transition to adulthood
Audience: Programme benefiting patients with a complex oesophageal malformation
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Title of the programme: Therapeutic education dedicated to children and teens living with a chronic inflammatory disease of the intestine and their friends and family (EDU MICI)
Location:
Paris - Ile-de-France
Hôpital Robert Debré - AP-HP
Type of structure: CH
Coordinator: Dr Christine MARTINEZ-VINSON
Title of the programme: Therapeutic education programme for children with an inflammatory disease of the intestine and their parents (EDU-MICI)
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Coordinator: Prof. Franck RUEMMELE
Title of the programme: Therapeutic education for children and teens suffering from chronic intestinal failure and requiring nutritional assistance via tube feeding: Training in tube feeding techniques for parents when returning home
Location:
Paris - Ile-de-France
Hôpital Robert Debré - AP-HP
Type of structure: CH
Coordinator: Dr Emmanuelle DUGELAY
Title: Home tube feeding
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Coordinator: Pr Olivier GOULET
Title: Physical rehabilitation centre for disabled children: therapeutic education for children and their parents
Audience: Programme benefiting patients with a complex oesophageal malformation.
Children and adults
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure:CH
Title of the programme: Therapeutic education for parents and children suffering from intestinal failure, dependent on parenteral nutrition (PN) with techniques for Home Parenteral Nutrition (HPN)
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Coordinator: Prof. Olivier GOULET
Title of the programme: Therapeutic education for children and teens suffering from chronic intestinal failure and requiring nutritional assistance via the parenteral route: Training in parenteral feeding techniques for parents when returning home
Location:
Paris - Ile-de-France
Hôpital Robert Debré - AP-HP
Type of structure: CH
Coordinator: Dr Emmanuelle DUGELAY
Title of the programme: Self-treatment (self-care) by home parenteral nutrition (HPN): advantages and disadvantages, factors helping and opposing therapeutic autonomy and improvement of the quality of life in case of non-cancerous intestinal failure
Location:
Haut-de-Seine - Ile-de-France
Hôpital Beaujon - AP-HP
Type of structure: CH
Coordinator: Dr Françoise JOLY
Title: Living well with your chronic pathology before the age of 18 (asthma, type 1 diabetes, sickle cell anaemia, rare diseases)
Location:
Seine-et-Marne - Ile-de-France
Hospital Centre of Meaux
Type of structure: CH
Coordinator: Dr François GOURAUD
Title: Physical rehabilitation centre for disabled children: therapeutic education for children and their parents
Audience: Programme benefiting patients with a complex oesophageal malformation.
Children and adults
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure:CH
Title: Therapeutic education for parents on at-home treatment of a child with a tracheotomy
Audience: Programme benefiting patients with a complex oesophageal malformation
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Title: Prevention of asthma attacks and improvement of the quality of life of an asthmatic child
Audience: Programme benefiting patients with a complex oesophageal malformation
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Title: Therapeutic education on chronic respiratory failure in children treated via non-invasive ventilation
Audience: Programme benefiting patients with a complex oesophageal malformation
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Title: Therapeutic education path from young people suffering from Pierre Robin syndrome or related syndromes, suffering from congenital swallowing and sucking difficulties and post-traumatic oral difficulties, and their parents
Audience: Programme benefiting patients with a complex oesophageal malformation
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Title of the programme: Drug treatment for non-neoplastic short bowel syndromes: observance and improvement in prevention of complications
Location:
Haut-de-Seine - Ile-de-France
Hôpital Beaujon - AP-HP
Type of structure: CH
Coordinator : Dr Françoise JOLY
Title of the programme: Intestine, liver-intestine and liver transplant
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Coordinator: Pr Olivier GOULET
Title of the programme: Therapeutic education for parents and/or children with faecal incontinence issues
Location:
Paris - Ile-de-France
Hôpital Trousseau AP-HP
Type of structure: CH
Coordinator: Dr Véronique FORIN
Title of the programme: Therapeutic education of children with digestive and/or urinary incontinence issues and digestive and/or urinary stoma and their parents
Location:
Paris - Ile-de-France
Hôpital Necker Enfants Malades - AP-HP
Type of structure: CH
Coordinator: Dr. Cécilia CRETOLLE and Cynthia TONELLATO
Title: TPE for children and adolescents with vesicosphincteric disorder and/or stoma
Audience: Patients with diaphragmatic Hernia
Location:
Paris - Ile-de-France
Hôpital Robert Debré - AP-HP
Type of structure : CH
Coordinator: Dr Annabel Paye-Jaouen
Title: Treatment of oral difficulties with artificial feeding
Location:
Paris - Ile-de-France
Hôpital Robert Debré - AP-HP
Type of structure: CH
Coordinator: Ms. Véronique LEBLANC